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Thursday 15 September 2011

we still have enough time (even life is short..)

Hikhikhik...ketawa kecil budak ni..as i was about to palpate his abdomen..parents nya xde.yg ada pun abangnya yg lbh kurang sama saiz..no adult who should look after him was around..he looks a bit delayed in his development n cognitive achievement..

Then i said okla dik..arini dah boleh balik sihat dah..
Budak tu masih ketawa sambil menutup mulutnya..sambil berkata n memandang tajam kt pusat graviti aku..then suddenly he said ;

Doktor!nak kabo ser (bgtau satu hal) ni..tali pinggang doktor sama dgn tali pinggang saya..huhuhu..

Lawak betul..nmpk sgt ciput jer gaji doktor mcm aku..dahla gaji ciput pakai barang pun sama dgn taraf patient ni(blh jd dia yg kaya tanpa berusaha kot..utk menyedapkn hati)..but actually tu yg menarik psl patient2 pead ni..they never lie to you..Aku punya tali pinggang BUM yg dbeli di Mydin of Course it is highly affordable for everybody n anybody in Kota metropolitan kt Kuala terengganu..

Tp yerla budak2ni mmg challenging la kalo ada mslh2 kesihatan yg x terungkai..terutama kalo bab2 developmental n functional disabilities disorder..i wonder how a CP(cerebral palsy) patient feels about their stormy life..how do they see the world..how  painful the pain they bare from the severe contractures resulting from the neurological problems..how is their appetite like as some of them are on tube feeding that bypass the palate pleasures..



i wonder how would they differentiate colors of the nature...?


Mcmanala budak2 yg brain tumor or post meningitic brain lesions yg mpunyai developmental regression menjalani khdpn..from able to walk but ends up with only able to crawl..sensoryneural
Hearing loss..small head .etc2..too many things to write it down(brain is the most amazing organ of human body)..the organ that never meant to be transplantable(so far)..

How a child with genetic disorders associated with brain anomaly facing difficulties in decoding the world's secret..i just wonder do they able to differentiate colors..enjoying sounds n musics..etc..etc.


ward round is my core business..
 Life wont be the same not only for those patients but certainly for the parents/guardians/caregivers..berat mata memandang berat lg bahu memikul..some of the parents are so motivated in looking after their handicapped children..but some might just so "inappropriately carefree" about this issues and the needs of their less fortunate children..tp siapala kita utk menilai mereka.

Life is so short for them..very short..i really mean 'very'..kebanyakkan anak2mereka ni umur x panjang..biasanya jarang2 mereka melepasi usia 10 tahun..tetapi rata2ibubapa yg menjaga adalah mereka yg memiliki semangat yg luarbiasa dlm memastikn anak2mereka sihat walaupun secara teknikalnya tiada ubat or penawar yg boleh memulihkn kerosakan kekal otak yg telah terjadi..(hoping for a medical miracle almost impossible in this situation)..


Do they have even a chance to have a walk in the park..?some of them- i do see.
 This short entry adalah lebih kpd mghargai semangat2mereka.. golongan ibu n bapa yg tidak mengenal erti letih n lesu bg mjaga anak istimewa mereka(syukur yaAllah aku ada ibubapa yg mjaga kebajikan aku)..sebagai doktor sekiranya kita kurang phm permasalahan mereka jgnlah kita cepat menghukum..Give them a break..they need us ..for them to channel the burden is so logical- if occasionally they express some 'giving-up' signs -but we as a medical staff should understand them.

I ve seen a family with three of their children having unexplained global developmental delayed n regression.it is almost exclusively occur at the moment they achieved age of 3/4 years old..1 of them already succumbed due to aspiration pneumonia leaving behind another 2 siblings who are totally dependant for the cares of their basic living skills..tp ibu yg mjaga xpernah kedekut utk menerbitkan senyuman setiap kali berjumpa baik di klinik or ward.

Kepada ibubapa yg mempunyai mslh yg sama diatas tdpt 1 hadith yg dikaitkn dgn perumpamaan sprt mereka (sumber resource room picu) :

Lalu Abu Talhah berkata dr Al-Dahhak bin Abd Rahman bin 'Azib menceritakan kepadaku daripada Abu Musa katanya : Rasulullah SAW bersabda bahaea Allah SWT berfirman yg bmaksud
"Wahai Malaikat Maut Engkau mencabut nyawa seorg anak drpd hambaku,engkau mengambil buah hatinya dan anak kesayangannya"

Jawab malaikat maut : Ya !

Lalu Allah berkata : apa yg ia kata (ketika kematian anaknya itu).?

Jawabnya malaikat : Ia memuji engkau dengan berkata kami ini adalah hamba dan milik Allah dan kepadaNya kami dikembalikn.

Maka Allah berfirman : binalah sebuah rumah utk nya di syurga dan berilah nama utknya Bait Al Hamd(rumah pujian)..



Im sure He will open the door of heaven to those who are unfortunate enough as above mentioned..
 maka bg doktor ..be prepared to give ur best for them because they are so special to God..dont let urself to be sluggished n sloppy in treating them..(aku ingatkn diri aku)..

Sesuatu yg Biasa bg kita boleh jd luarbiasa utk yg lain -SH.


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2 comments:

  1. Kids are such wonderful little creatures, aye? I wonder how their small bodies carry such great determination. Such great strength. Such adorable sincerity. Always willing to experiment. Always full with questions.

    We were once kids too, weren't we? But where have we lost our old self? I guess, we must learn again - from these kids.

    (^_^)

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  2. Agree..we lost our innerself perhaps during our aging process..sbb tu disiplin agama kdg2makin luput bila seseorg menginjak dewasa..

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